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Thanks to the Pathology Dept at Alberta Children’s Hospital

  • Posted on November 26, 2008 at 11:27 am

Our daughter was in the Alberta Children’s Hospital last weekend and I finally got around to thanking some people for how they helped us through Kye’s loss.

After Paula’s surgery, his remains were taken to the Children’s Hospital for autopsy. Unfortunately, they were not able to tell us what happened (Dr Woods, the surgeon was nice enough to put his remains in fermaldihyde, which made some tests impossible). They did however get us a few things that really helped. All of which, Dr Woods had said were not possible…

They were able to tell us Kye was a boy. That really, really helped the process for us to be able to identify him as a boy and not an “it” and give him a boy’s name. A number of people (read as idiots) had said not to worry about it and just give him a generic name or pick a gender, and we would have if we had had to, but it really does not work as well as getting an answer. When Paula went into surgery I begged the doctor to find me an answer and tried to explain just how important I knew it was to Paula and I. He made it quite clear that it would be hard and he really didn’t care. Luckily, the Children’s Hospital was able to give us an answer and it helped a lot.

After I finally tracked Kye down (Dr Woods of course first told me that we could not get the remains and then gave me the wrong phone number), I arranged for his cremation. Luckily, at that point I ran into a bit more red tape and was forced to talk to a social worker about an autopsy. It turns out that we were supposed to get hooked up with a social worker while we were at Foothills hospital for Paula’s operation, but they had screwed it up… Go figure, they did that a lot. Well, that got me talking to Lori-Ann Schultz who has been a tremendous help through all of this. I happened to mention that we had asked for Kye’s foot prints, hand prints, or something to remember him by since we never got to see him. She called me back in five minutes to say that while they had not been able to get a hand print, they had a set of foot prints for us. When we finally got the foot prints, they were even on a nice card with an appropriate little poem and were beautifully done. That card and footprints are the closest thing to a picture or something similar that we have of Kye. You can not imagine how important that is to us.

Anyways, I just thought that the staff who handled his remains and autopsy should know just how much it ment to us since I am sure it must really suck to continually just see the worst side of that.

I bought them a nice card and wrote a note telling them how much I appreciated what they did for us. I had wanted to actually say thanks, but by this time, I realized that there was no way that I could do much more than croak “thanks” and start balling, so I settled for a letter. I had the charge nurse in Emma’s ward track them down and it turned out that they were just down the hall, which then meant that every time I walked down the hall I thought of Kye… Anyways, I hope they got and appreciated the letter. It was addressed simply to “the people who handle infant autopsies”, but when I dropped it off, the nurse started reading it aloud, then stopped and looked really sadly at me and said that she would make sure that it got to the correct people.

That was one of the toughest things that I have done since the surgery.

When I got back from my “walk” of course Paula realized that I was messed up and made me tell her what was up (I had not talked to her before hand because we were both pretty stressed and I figured that it would be better to explain later). She was just thankful to them too.

So, once again, to the “people who handle infant autopsies” ad the Alberta Children’s Hospital, thanks a lot.

Just a few comments for anyone that does this kind of work:
1) Thanks, it is very important to someone.
2) Sometimes the answer is more important than the truth. I begged with several staff to just give me an answer about Kye’s gender and was clear that I just needed an answer for her. If they could not get a scientific answer, a gut feeling would do so I could tell my wife without me having to lie to her. Most were genuinely unsympathetic. I don’t think that they realized that we really needed an answer to be able to move on. The truth of the answer is secondary. While I don’t think that the Pathology dept made up an answer, if they did, I am even more thankful to them. Frankly, this also applies to his footprints. They give us something to hold onto.

In short, if you are ever stuck with working a case like this, please remember, while things like footprints and gender are medically not important, they can be very important for a parent’s healing and any way that you can give them that comfort is a great help.

Sometimes it just sneaks up on you

  • Posted on November 17, 2008 at 9:02 pm

It is amazing how much changes after you lose a baby. One thing that I really notice is how much more careful I have to be about watching TV. I used to just be able to zap through and at the worst I might be grossed out or somewhat offended.

Now I am pretty careful about avoiding things that will cause Paula and I pain. I usually watch TV with Paula and so I just tell myself that I am trying to help take care of her and protecting us from pain. I like to think that I am stronger than that.

Of course, as soon as you start thinking how strong you are someone is going to knock you down. I was watching TV by myself, and found some old war movie and figured that would be pretty harmless. I find that even though people are dying, it is so far removed from my life that while I can feel for them, I can handle it and it feels like something that I would normally have done before Kye died.

The movie was “Farewell To Arms”. It starts out as a war movie, then turns to a love story of them fleeing war. Okay, that is still nice and I am kinda watching it, kinda doing other things. The next thing, the heroine goes into labor. The labor goes badly and the baby that she wanted so much dies and I am sitting there crying. So much for a distant war movie being something “safe”. I don’t know how it ended. It just got to the point where it was dredging up to much pain and I turned it off.

Sometimes, it turns out that maybe you are not as strong as you told yourself after all.

The Canadian Taxpayer’s Federation Comes Out Against EI After an Abortion, Regardless of Cause

  • Posted on November 10, 2008 at 7:41 am

I recently came across a poorly informed editorial by John Williamson who is the federal director of the Canadian Taxpayers Federation.  I just got a response published on Sociberty as “The Canadian Taxpayer’s Federation Comes Out Against EI After an Abortion, Regardless of Cause“.
Basically, while on the surface it sounds like the government is giving free holidays, if you look into it you find that you have to have a doctor’s referal for it and it is meant for women who have an operation that is termed as an abortion, but the baby may already be dead (it is the same operation) or the family is forced to make some tough decissions and terminate a desperately wanted and loved pregnancy due to defects that mean that the baby could not survive.  These are not people just having casual sex and then having abortion afterwards, but rather families going through the worst experience of their entire life.  While a little time off is often not enough, it at least offers these women some time to work through their grief before having to go back to work.

Avenue Magazine writes about parents handling miscarriage and stillbirth… Then hides it…

  • Posted on November 3, 2008 at 12:15 pm

It is always interesting and bizarre to see how people react to the whole topic of miscarriage and infant loss or for that matter loss in general.

A while back, someone came round to Caring Beyond (an infant loss support group) saying that she was writing an article for an upcoming issue of Avenue Magazine. She asked to talk to us and then also asked if she could borrow any pictures, certificates, or anything else significant in order to add them to the article. I have to admit that I was pretty surprised that they were going to do an article on how parents deal with miscarriage and stillbirth.

The author asked me to outline my experiences, so I started to quickly jot down what happened and that turned into a 5 page essay (http://www.kye.thebentleys.ca/node/258). That whole thing was boiled down to ““We cry too. Boy, do we cry. We just try not to do it in front of [the mothers of our children] so much, because we don’t want to suck them down even further. We have to take care of them.” Well, close enough I guess.

Then she asked for any pictures etc. We have no pictures of Kye. The closest things are his first blurry ultrasounds and his footprints (which we barely got after the surgeon Dr Woods at Calgary’s Foothills Hospital told us it was not possible and did absolutely nothing to try to make it possible). These are immeasurably important to us, but we lent them to her with the understanding that they would be well taken care of. She drove across town to pick them up. A little while later, she told us that we could drive across town to pick them up as she could not be bothered to go out of her way to return them. That was rather frustrating.

When I finally did get to see the article, I was stunned. It is a five page article, but the first page is a picture of a couple trees, and most of the second is the title, so really it is a 3 ¼ page article. There are no pictures, footprints or any illustrations other than a few quick watercolors of sticks and leaves! There were not even footprints or a certificate of life. The closest that they came to acknowledging these children is a little list in one corner. Basically, unless you actually read the article, you would never know what it is about and it just blends into the background.

Oh well, I must admit that I had gotten my hopes up to high, but I was rather pissed off that after all the fuss about getting our pictures and stuff, there is not even one in the article.

I was going to put a link to it in our blog, but I can not find it on the Avenue site. It is not mentioned in the “current issue” section and even doing searches based on the article name or subject does not get a response. It looks like this is one of the articles that they have chosen not to share on the web.

In the end, I guess there are some very definite limits to how much they are interested in talking about this subject. The saddest thing is that the article header talks about how parents struggle with their loss and says that “some are starting to break the silence around miscarriage, stillbirth and the loss of their children.” Sometimes you just have to shake your head and wonder…

Paula wrote about her experiences since Kye’s death at Helium.

  • Posted on November 1, 2008 at 9:09 pm

Paula did a lovely article about her experience since Kye died at Helium (http://www.helium.com/items/1220806-life-after-miscarriage).

It was very touching to read her story. It was also interesting to see it through her eyes.

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